The Sydney Harper Foundation was created in 2018 with a vision of a world where families are offered options for early screening and detection of Wilms Disease and have the emotional and financial support needed to cope with the effects of this disease. It is a nonprofit organization whose mission is to provide education and awareness, and to increase knowledge around early prevention and detection of Wilms Disease as well as provide support programs, resources and a sense of community to those impacted by Wilms Disease.
Sydney Harper was a spunky three year old girl who died unexpectedly in February 2018 from complications of Wilms Disease, a rare form of pediatric kidney cancer that often strikes without any symptoms.
Sydney’s mother Brittany says that “We miss our Sydney Harper horribly. Sydney loved life, her family, bobcats, bacon and the color pink. The one thing we can do, in her memory, is to create this foundation, to ensure that she gave her life for a powerful purpose. I will make it my life’s job, through my precious daughter’s memory, to help raise awareness and help other children and their families fight this horrible disease.”